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Based in Lola Karimova-Tillyaeva´s native Uzbekistan, the National Centre for the Social Adaptation of Children (NCSAC) has been in operation since 2004. Founded by Lola Karimova-Tillyaeva and her husband, businessman Timur Tillyaev, it is their second oldest philanthropic organization – only the celebrated, You Are Not Alone has been around longer. Unlike You Are Not Alone, NCSAC has a much narrower focus. In Lola Tillyaeva´s words its role is to, “provide life-enhancing opportunities to children with disabilities.”
The centre does this by offering a wide range of services such as diagnosis, orthopaedic and neurological treatment, speech therapy and education. Remarkably, these services are provided entirely free of charge. To date thousands of Uzbeks families have taken advantage of the NCSAC. The facility is not merely unique to Uzbekistan but there is nothing else like it anywhere throughout Central Asia.
The NCSAC is also able to offer Uzbek kids with special needs access to a host of medical specialists. Lola Tillyaeva has assembled a team which includes, “speech therapists, special educators, psychologists, neurologists, therapeutic exercise specialists, orthopedic surgeons, masseurs, sign language teachers and art therapists.” Experts in their fields, Lola Tillyaeva´s staff tailor programmes to cater for the specific needs of each child. Amongst the 7,000 kids assisted so far, typical conditions include Down Syndrome, cerebral palsy and autism. The goal in every case is to maximize their quality of life. To this end, the centre boasts a diverse array of equipment. As her website explains, “a Lokomat treadmill, Solostep physical therapy devices and standing frames are all available to assist in the treatment of kids with musculoskeletal disorders.”
By teaming such a qualified team of specialists with quality installations, kids under their care routinely achieve life-changing milestones such as walking for the first time. Material support such as wheelchairs and hearing aids are also available.
NCSAC also has a role in supporting children’s families more generally. They offer counselling, financial support, and programs specifically for mothers who’ve been bullied or excluded by their families or husbands because of their child’s condition. In this way, “NCSAC strives to make a real, positive difference to the lives of children and to offer vital support to their families and carers, with the goal of helping disabled children attain their full potential.”
NCSAC has a close working relationship with organizations such as UNICEF, UNESCO, UNDP and the EU. Inside Uzbekistan it works hand in hand with You Are Not Alone. Going strong for almost two decades, this organization helps financially disadvantaged kids and orphans right across the country. Here the aim is, “for every orphaned child in Uzbekistan to know that they are not alone and that we will continue doing our utmost to help them succeed in their life.”
This is just one way in which Lola Karimova and Timur Tillyaev express their profound attachment to the land of their birth.
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